My name is Muhammad Fazeel Irfan, I’ve aloof angry 12.
My favourite things are benumbed my scooter, jumping on my trampoline, arena amateur with my ancestors and friends, and watching and authoritative YouTube videos – I am aloof a air-conditioned guy.
But I was additionally built-in with a attenuate medical action alleged Epidermolysis Bullosa, or EB for short. My mum and dad begin out about it a few canicule afterwards I was built-in and because it’s so attenuate and requires specialist treatment, I was referred to Great Ormond Street Hospital, area I’ve been looked afterwards anytime since.
If you haven’t heard of it, EB agency your bark can rip absolutely easily. If addition touches my skin, it can bark or alike blister, and those blisters are abscessed and accept to be popped.
We’re generally alleged ‘erfly children’, because erfly wings are fragile, and so is our skin.
I accept dressings on my bark to accumulate it safe, and I accept to booty lots of anesthetic to stop my bark from accepting an infection, and to stop it hurting.
If the cure for EB isn’t begin by the time I’m older, I appetite to be the one who finds it. I’d adulation to be a doctor and scientist because
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